Whenever we go and seek consult, I always prepare a set of questions for my doctors in my iPad. I want to be informed. I just need to be educated. I feel that I am doing my part. Also I want my doctor to see that I am cooperating and that my health is a big deal for me.
So here's my list of questions for my doctor tomorrow:
1. The cotrimoxazole and azithromycin are for the treatment and prevention of PCP, MAC and toxoplasmosis. Will I stop taking them once my CD4 level goes up? What is the cut off level? I read that if my CD4 level goes up to 250, I can stop them.
2. What OI's or infections can halt or stop my ARV treatment?
3. Will I be needing vaccinations to prevent infection? What CD4 level do I have to be on to get the vaccinations?
4. Are my vitamins ok? I'm taking multivitamins, Vit C and E and fish oil even before I got sick.
5. Who will I call when you go out of town or country?
6. I sometimes have itchiness with no rashes, most often when I am in a hot environment or under the sun. Will they disappear? Are they from my ARV's or my prophylaxis?
7. I work as a _______. When do you think I can get back to work? Is it safe for me to work there or will I have to wait awhile just to be safe?
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