The official blog of The Project Red Ribbon Care Management Foundation, Inc. (TRR).

  • TRR LOVE FUND

    TRR Love Fund is the arm of the foundation which provides medical assistance to the financially challenged PLHIV.

  • Care assistance for HIV Test

    The Care Assistant Program involves assistance to HIV testing and HIV and AIDS Treatment hubs in the Philippines. Our volunteers schedule the client to the clinic or hub, assist with the procedure in the clinic or hub and conduct peer counseling

  • HOTLINE ASSISTANCE

    With the TRR Hotline Numbers, our volunteers answer concerns and inquiries about HIV and AIDS, do counselling, refers clients to nearest HIV Testing facility, HIV and AIDS Treatment Hub and government and NGO organizations for support

  • PEER COUNSELING

    The foundation volunteers conduct one-on-one counseling either on the phone or in person. They also conduct group counseling

  • SUPPORT GROUP TALK

    The support group talk (SGT) is a program that involves giving HIV lectures by guest speakers, discuss topics about HIV, care, treatment and support, discussion issues related to HIV

  • OUTREACH PROGRAM

    The foundation's outreach program is geared towards providing support to our fellow PLHIV's in the HIV and AIDS Treatment Hubs. Volunteers hand out of donations of medicines and special gifts to PLHIV, give inspirational talks by invited guests to a group of PLHIV, bonding over snacks or meal, visit the sick who are confined in the hospital

  • Referral System

    As part of treatment, the foundation's referral program involves our volunteers referring clients to specialized doctors who are HIV friendly. The foundation has it's own list of specialty doctors of low cost for the indigent PLHIV.

  • Online Support Group

    The foundation has a private Online Support Group in facebook. This group of advocates, supporters, counselors, health Workers and PLHIV

  • Home Health

    Aside from client counselling, the foundation volunteers also do family counselling and home visitation for awareness and continuance of care.

  • Health Fitness

    The foundation believes in holistic approach to treatment and care, thus inclusion of these programs: yoga, dance, swimming, jogging and running, boot camp workouts

  • EVENTS

    As part of awareness and education program, the foundation organizes its own national events to coincide with the international AIDS events: World AIDS Day and International AIDS Candlelight Memorial

Wednesday, December 14, 2011

My Second Refill


Yesterday,  I went to RITM as planned because I need to refill even though I still have an ample supply (I'm still good for 17 days supply of my ARV's). I know everybody will be busy for the next 2 weeks so I might as well get them now. I saw Letlet and Ate Ellen again and there where like 4 people who were waiting in line. I waited for like 10 minutes to talk to Letlet and I gave her my prescriptions. While she was looking for my card, I approached Ate Ellen and gave her the prescriptions for my vaccination. She attended to me fast and left to get my vaccines. I went back to Letlet and she told me that their efavirenz was out of stock. I got worried so I texted Dr. RD and informed her. She told me that their supply will come anytime that day, but she can have my medicines delivered in her clinic, so I just left my prescription to Ate Ellen.

As Ate Ellen prepped me up for the injections, she told me that they've been waiting for their supply since the other day. So I asked her what if there are patients who didn't have any efavirenz anymore. She told me that it happened to them before and she had to call people to donate their pills first to the needing ones. She told me that the best way to do it is to come to the hub as soon as you open your last bottle so if there will be any problems, you will still have your supply.

Ate Ellen was skilled in injecting. I didn't feel anything. She also told me that I can be vaccinated by her at my home if I want to. She can bring my meds and it's up to me to pay her any amount. That was sweet of her. I paid her P2,100 for all my vaccinations.

The people there were very friendly, so before I left, I gave the staff P1,000 donation to their Christmas party. They were so helpful to me even though there was a line there. Maybe because I'm a patient of Dr. RD? Or maybe I looked friendly. Haha.

Anyway, I left RITm with no ARV's. I will just get them from DR. RD's clinic as she promised to text me when she has them.




FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love Fund : The Love Fund

Sunday, December 11, 2011

Supplemental Treatments

I’ve been told a lot of times about the benefits of these supplements and food. Some pozzies believe that they can really help in increasing the CD4 and or decreasing the viral load, together with the ARV's. I asked Dr. RD about this and she just said that she has nothing against any of them except that there are really no proven facts or literature saying that they are effective.

Well, for the benefit of everybody, I made a research about these and this is what I got. It's up to you to decide.

Grapes

HIV promotes a strong and destructive Pro-oxidant state within the body. This Oxidative state produces stress that can damage cells and tissue in the body. Since we are on the subject of nutrition, I should mention a food that can help. 

Grapes!  Grapes not only have a full assortment of nutritional value, including; Vitamins B12 and C, Selenium, Zinc and Resveratrol, as well as much more. But it also acts as a powerful Antioxidant, thus reducing cell and tissue damage. In-fact to illustrate some of the power of grapes, there is something called the French Paradox. Researchers have found that the French regularly eat more animal fat, which has been linked to greater chances of disease, such as Heart Disease. The Paradox comes in when the French maintain a low incidence of Heart Disease. This is primarily believed to be due to their high consumption of red wine and the Resveratrol in it. Resveratrol is currently being researched as alternative treatments for cancer and HIV for its potent qualities.  It is believed to work by halting both cancer and HIV from progressing and replicating, and even is believed to induce cell death within cancer cells.

Back in the 1980’s, Johanna Brandt, an immigrant from South Africa, developed what she called, a cure, derived from grapes.  It was shortly titled, the Brandt Grape Cure, and it was believe to cure both cancer and reverse HIV, through it potent Antioxidant, detoxifying and nutritional properties.  Though the cure has been ridiculed as being a hoax, it is only now that some of the many properties of grapes are getting a second look, as we are discovering some of its potential in the area of fighting diseases.   This treatment starts off by cutting all other foods from your diet before going on a 12 hour water fast.  After 12 hours, you casually consume grapes (preferably concord or purple grapes, with the skin and seeds intact) over the next 12 hours as well as your drinking water accordingly.  Afterwards, you start the process over again until healthy.

The theory is, the fasting puts your body into a more starved state as well as the infected cells, then when you eat the grapes, the disease fighting qualities of the grapes are what the diseases themselves get instead.  It is important to note that the skin and seeds should be intact and the grapes themselves, fresh and unprocessed, as that’s where a majority of these nutrients come from.

Selenium

HIV patients may have an effective weapon to lengthen their lives, thanks to selenium. Taking a selenium supplement daily appears to keep HIV at bay and also strengthen the immune system, according to research by the University of Miami.

In a double-blind study of 262 HIV patients divided between patients receiving the supplements and placebos, the patients who received 200 micrograms of high-selenium yeast each day fought the disease much better. When each patient was given a comprehensive medical exam at the end of the study 9 months later, the ones who took selenium daily had a lower amount of the HIV in their bloodstream and better immune cell counts compared to those who hadn't.

The reason selenium may help people with HIV live longer is its antioxidant properties: it may help reverse damage that the disease does to the immune system. However, that does not make it a substitute for the antiretroviral therapy medications used to fight HIV, the researchers concluded.

Virgin Coconut Oil

It was in the 1980’s when the ability of medium chain fatty acids like capric and lauric to fight HIV was first discovered. Antiviral drugs that are currently being prescribed fail to save lives and restore the health of Aids victim. Aside from the fact that the virus can develop resistance to these drugs, it also has lots of adverse side effects. Medium chain fatty acids is said to be a more effective cure as it attacks the virus in a different way than other drugs. Instead of targeting the genetic material of the virus, MCFA’s simply breaks the virus apart. The absorption of MCFAs by the virus weakens the lipid membrane of the virus and will eventually kill the virus. This mechanism of action makes it almost impossible for the virus to develop resistant strain to MCFAs.

Dr. Conrado Dayrit, a medical doctor from the Philippines did the first study on coconut oil for treating Aids patients. His study tested the effect of monolaurin and coconut oil in 14 HIV patients, ages ranging from 22-38. Four grams of monolaurin a day was given to four patients while five of them received 7.2 grams of monolaurin. The last group was given 3 ½ tablespoons of coconut oil per day. At the end of the study (six months), the viral count of nine patients decreased. Two of them were from the first group, four from the second, and three from the third group. Eleven of them showed health improvements. This research proves that monolaurin and coconut oil can be used to treat Aids patients.

It's for you to decide, but still best to ask your doctor first before you take any other supplement!




FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love Fund : The Love Fund

Email 1 Looking for Support Group

Hi Pozziepinoy,

I just came across your blog and I would like to commend you for it. The simple advocacy is great.
I usually don’t read local blogs about HIV because most of them are really scary, uninformed and negative but yours is really pleasant.

I am also poz. I got diagnosed last October and started my meds the same month. Funny thing is that I can really relate to some of your posts and all the things you’ve been through.Halos pareho lahat: from the intensive research about the disease, commitment for adherence, the rashes, side effects, the desire to get back to health & fitness, nutrition, wanting to be informed and all. We even go to the same doctor. 

Anyway I still have a lot to learn about the whole thing. I’ve already accepted my status and thankful that my family is in full support of me. Only close friends and close relatives know about my status. And I’d like to keep it that way. Tanggap naman nila. (hindi naman siguro masama yun).

Marami pa rin akong fears of course but I guess it’s normal. I just tell myself “It’s all a process”. And I pray and pray lagi. I am kinda private person and I am grateful that my experiences last October didn’t put too much toll on me. I met the right people I needed and my family made it easier.

I wanted to go back to work because I feel great already but my parents begged me not to until I am stable with my numbers. So I’m kinda bum right now, not that I’m complaining. J Sobrang marked improvement kc since I started my ARVs. And my doctor told me everything will go back to normal as long as I commit to it. And I trust her.

One thing that I am lacking right now is a support poz group. I haven’t even met or talked to someone who is poz, terrible but true. I know I should and I’d love to. I see them all over the net but I guess I’m not yet ready. This is really the first time I am reach out (pardon).

Anyway I hope we can keep in touch. I’ll try post some comments on your entries to compare notes if you don’t mind or add inputs.

Keep up the good work.

XXX




FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love Fund : The Love Fund


HIV Stops With Me!

Everything Will Be Ok!

So you got your confirmatory result and you don't know what to do. You cry a little, blame yourself a little, regret what you have done, get scared of your life and your work, don't know who to tell. We all have experienced that. It's a normal stage that we go through but don't fret. Everything will be fine. You are alive and you are capable of thinking straight. Life is full of hope and with our disease there is hope that everything will be ok!

The best way to calm yourself and open your mind to our disease is begin to be knowledgeable about it as soon as possible. You need to be educated fast about our disease and the treatment.You can look for an infectious disease (ID) doctor or even go to a hub near you (you can email me if you want details about the hubs or any ID). You can also surf the net to answer all your questions. You can also learn from the wisdom from other people who are living with our disease from stories in the net or blogs or even in youtube. Trust me, you become less scared if you are well informed.

Its better to talk. When you are ready to tell somebody, do it. Half of your worries goes away when you talk about our disease. Trust me, it gives you strength when you know you are not alone with your fight. Usually, the family members and parents are the first people to reveal to because no matter what, they are your family and your suffering will be their suffering too, your strength will be their strength too. I know it would be hard at first but by telling them, you will be protected. Another person to tell is a close friend. Trust me, it lightens the weight that you are carrying when there is a shoulder to cry on or a person who will embrace you and understand and tell you that everything will be fine.

Those are the first steps to cope up fast to our disease. I keep reiterating that everything will be ok because that is the truth. A little step forward everyday will bring you forward towards a brighter tomorrow. You are not alone. We are all fighting, everyday but by having a good positive attitude, everyday becomes a good day!




FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love Fund : The Love Fund

The Flu Shot

I asked my doctor, Dr. RD if I can take any vaccination even though my level of CD4 was initially low.She said I can be vaccinated if I want to and she prescribed 4 vaccinations, one of which is the yearly flu (influenza) shot.

I got this from the CDC Fact Sheet:

HIV/AIDS and Influenza (Flu)

HIV (human immunodeficiency virus) is the virus that causes AIDS (Acquired Immune Deficiency Syndrome). HIV kills or damages cells in the body’s immune system, gradually destroying the body’s ability to fight infection and certain cancers. 

People with HIV/AIDS are considered at increased risk from serious influenza-related complications. Studies have shown an increased risk for heart- and lung-related hospitalizations in people infected with HIV during influenza season as opposed to other times of the year, and a higher risk of influenza-related death in HIV-infected people. Other studies have indicated that influenza symptoms might be prolonged and the risk of influenza-related complications higher for certain HIV-infected people. Vaccination with a 
flu shot has been shown to produce an immune response against influenza viruses in certain people infected with HIV. Because influenza can result in serious illness, HIV-infected persons are recommended for vaccination.  

Should people with HIV/AIDS receive the inactivated influenza vaccine? 

People with chronic underlying medical conditions, including HIV/AIDS, should receive inactivated influenza vaccine (the flu shot). People with HIV/AIDS are considered at increased risk from serious influenza-related complications and should be vaccinated.Persons with advanced HIV disease may have a poor response to immunization. Therefore, chemoprophylaxis (use of antiviral medications for prevention) should be considered for these patients if they are likely to be 
exposed to people with influenza. 

Are there people with HIV/AIDS who should NOT receive the inactivated influenza 
vaccine? 

Contraindications to the use of inactivated influenza vaccine (the flu shot) in persons with HIV/AIDS are the same as those for uninfected persons ― a history of severe allergy (i.e., anaphylactic allergic reaction) to hens’ eggs, or a history of onset of Guillain-Barre syndrome during the 6 weeks after vaccination. 
Can people with HIV/AIDS receive the live attenuated flu vaccine (LAIV, sold 
commercially as FluMist)? 

No. Persons with HIV/AIDS and persons with other medical conditions are not recommended to receive the live influenza vaccine. LAIV contains a weakened form of the live influenza virus. LAIV is approved for use only among healthy persons between the ages of 5 and 29 years. 



FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love Fund : The Love Fund

Friday, December 9, 2011

Second Consultation

I had my second consultation with Dr. RD this morning. I was there around 7:30am when nobody was there yet, so I put my name on the paper on the door. Of course, I was number one. After 45 minutes I saw 2 girls wearing masks. They peeked inside the clinic room through a small glass window. I asked them if they're also going to see Dr. RD and when they said yes, I told them to write their names on the paper too. Later on I found out that they are new patients and are referred from a nearby hospital. They were from Quezon City. I didn't pry anymore. After 15 more minutes, another woman came wearing a mask and looked at the glass window too. Whoa, I was outnumbered there.

At 9:20am, the secretary came and opened Dr. RD's clinic and called my name. She made me fill out a form and weighed me. I was 170 pounds there! Geez! Then I sat down inside the clinic and waited for my doctor.

At 9:35am, Dr. RD came in with her daughter. She saw me and greeted me and in minutes, I was already sitting in front of her desk. I gave her the photocopies of my files and a tabulation of my lab tests. She was glad that my ALT already went down. She browsed on my records and then prescribed 3 months supply of my ARV's which I will get from the hub on the 13th of this month since we will be around that area on that date.

I asked her about taking again my regular vitamins. She said that I can take the over the counter vitamins like what I used to take. I asked her about VCO and selenium and she said she has nothing against them, and those supplements have no proven data yet when it comes to their actual effectivity.

I asked her as to what level of CD4 count should I have for me to have vaccinations. She said at any level, at any time, I can have the vaccinations. She then prescribed me 4 vaccinations that I can have: the flu vaccine, hepa B vaccine, streptoccocus vaccine and meningococcemia vaccine. She told me that hepa B in RITM is free and the rest, I have to pay for them.

I told her that I don't have any side effects from my meds since I'm following the empty stomach directions from my previous doctor. I told her that after taking my meds, I get hungry so I asked her if I can eat after taking the meds, especially efavirenz. She told me that I can eat 2 hours after taking all my meds.

She scheduled for all lab tests to be repeated on mid March plus my CD4 test. I will be seeing her then before I get my next refill from my hub.

Before I left, she told me that my other doctors in the other hospital were asking about me. She also told me to say hi to Tag for her. I smiled.




FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love Fund : The Love Fund


Tuesday, December 6, 2011

The October Report


The National Epidemiology Center of the Department of Health just released their October report on the status of HIV/AIDS in the country:

1. In October 2011, there were 200 new HIV Ab sero-positive individuals confirmed by the STD/AIDS Cooperative  Central Laboratory (SACCL) and reported to the HIV and AIDS Registry
2.  This was 92% higher compared to the same period last year 
3. Most of the cases (97%) were males. 
4.The median age was 27 years (age range:15-65 years). 
5. The 20-29 year (60%) age-group had the most number of cases.    
6. Fifty-four percent (108) of the reported cases were from the National Capital Region (NCR).
7. Reported mode of transmission was sexual contact (183), and needle sharing among injecting drug users (17) 
8. Males having sex with other males (85%) were the  predominant type of sexual 
transmission 
9. Most (199) of the cases were still asymptomatic at the time of reporting AIDS Cases
10. Of the 200 HIV positive cases, only one was reported as an AIDS case, a 27-year-old male. The infection was acquired through bisexual contact.
11. No AIDS-related death was reported for this month.
12. Twenty-one of the 200 (10%) reported cases were OFWs. There were 19 males and 2 
females. The median age was 31 years (age range: 19-44 years). All cases acquired the infection through sexual contact


Credits:
Philippine HIV/AIDS Registry NEC-DOH



FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love Fund : The Love Fund