The official blog of The Project Red Ribbon Care Management Foundation, Inc. (TRR).

  • TRR LOVE FUND

    TRR Love Fund is the arm of the foundation which provides medical assistance to the financially challenged PLHIV.

  • Care assistance for HIV Test

    The Care Assistant Program involves assistance to HIV testing and HIV and AIDS Treatment hubs in the Philippines. Our volunteers schedule the client to the clinic or hub, assist with the procedure in the clinic or hub and conduct peer counseling

  • HOTLINE ASSISTANCE

    With the TRR Hotline Numbers, our volunteers answer concerns and inquiries about HIV and AIDS, do counselling, refers clients to nearest HIV Testing facility, HIV and AIDS Treatment Hub and government and NGO organizations for support

  • PEER COUNSELING

    The foundation volunteers conduct one-on-one counseling either on the phone or in person. They also conduct group counseling

  • SUPPORT GROUP TALK

    The support group talk (SGT) is a program that involves giving HIV lectures by guest speakers, discuss topics about HIV, care, treatment and support, discussion issues related to HIV

  • OUTREACH PROGRAM

    The foundation's outreach program is geared towards providing support to our fellow PLHIV's in the HIV and AIDS Treatment Hubs. Volunteers hand out of donations of medicines and special gifts to PLHIV, give inspirational talks by invited guests to a group of PLHIV, bonding over snacks or meal, visit the sick who are confined in the hospital

  • Referral System

    As part of treatment, the foundation's referral program involves our volunteers referring clients to specialized doctors who are HIV friendly. The foundation has it's own list of specialty doctors of low cost for the indigent PLHIV.

  • Online Support Group

    The foundation has a private Online Support Group in facebook. This group of advocates, supporters, counselors, health Workers and PLHIV

  • Home Health

    Aside from client counselling, the foundation volunteers also do family counselling and home visitation for awareness and continuance of care.

  • Health Fitness

    The foundation believes in holistic approach to treatment and care, thus inclusion of these programs: yoga, dance, swimming, jogging and running, boot camp workouts

  • EVENTS

    As part of awareness and education program, the foundation organizes its own national events to coincide with the international AIDS events: World AIDS Day and International AIDS Candlelight Memorial

Sunday, March 18, 2012

Email 7: Accuracy of Tests

I received another email and I feel I need to post this so others can learn from his/her situation and from the comments that I can give. To paranoid freak, I hope you don't mind. I also deleted some personal information to cover your identity.


"I am from XXX, not a pozzie but i really feel that I already have acquired the disease after experiencing almost 3 months of low grade fever 37.3-37.5 c, after the long bout with the fever, I had dry mouth all the time, burning sensation in both hands/arms and feet, 2 attacks of hives/urticarial rash which lasted for 4-5 days and a feeling of always tired which i am still experiencing until now. I have had 2 rapid tests in a government hospital in our place at 2 moths and 3 months post exposure but i was a bit doubtful of the accuracy of the result and the test itself. I am quite far from treatment hubs and hygiene clinic which offers confidential testing and so i still wasn't able to test again in a facility which I can be assured of the result's accuracy.  I also have done several tests for diabetes , thyroid problems, electrolyte imbalance and all are normal. I am really have become worried since some symptoms I have appears only in the late stage of the disease. Reading blogs like yours gives me a little relief and a spark of hope no matter how bleak it is at times.

Since having all those symptoms, I started reading blogs of pozzies and I have become an avid reader of your blog posts. I always check it everyday to see if you have written a new post. I have been inspired by the positive atmosphere there is in your every write-up. No matter how difficult the situation seems, you always bring in positivity in the midst of what others might perceive as disaster or misfortunes. I salute you for being so brave and strong despite having the virus and for making an initiative to help other pozzies who are financially in need. I was moved by the prayer request you just posted for all pozzies you know. I will help praying for everyone to have a healthy, long and productive life.  I hope you continue to inspire others to live and continue living!

Please pray for me and the others like me who are worried and anxious and have been continuously suffering from annoying symptoms. 

May God bless us all always!"



Hi Paranoid Freak. Thanks for your email to me. Let me start by saying that I am proud that you are proactive about your health. I am proud that you have taken the test. It really takes a lot of courage for a person to really do it, especially from your place. So I salute you.

Let us take this step by step.

First, about your symptoms, I think it is best for you to consult a doctor. In our case, we go to an Infectious Disease doctor (ID). They are the ones who are specialized in handling all the cases of HIV/AIDS here in the country. With the guidance of your doctor, it will be easier for you to be given guidance on what you should do and what you should be taking note of when it comes to your health. He or she will also guide you with the proper HIV tests just to calm down your nerves. Don't worry, there is always a doctor-patient confidentiality. My friend, look at the bright side. Look at it from a different perspective. Basically, you have normal results both for the HIV test and your lab workout. So for me you are already so blessed.

Second, about the accuracy of the rapid HIV test. I feel that you are are still doubtful, however you don't have to go to the hubs to do the rapid test. Both government and private hospitals have the same equipments and tools to do the rapid test. However, if you are still doubtful, get another one in a different private hospital, but with your two previous negative results, I will pray that the next one will still be negative. My previous doctor advised my partner to immediately take the test when I turned out positive, then 3 months after again. Good thing his results were negative. He will be taking the test again this month, which is 6 months after. I've been texting a girl with the same situation as you and I advised her that to be sure, to take another test. I will also ask my doctor, Dr. Ditangco if she can recommend a hospital in your area that you can go to to take the test, well just to be sure, if it would help in calming down your nerves. Although you had previous symptoms, still the ultimate initial test for HIV is the rapid test. I think that you already know this, that if the test turns out positive there, it will be sent to Manila for confirmation with the ELISA or Western Blot Test which will take 2-3 weeks.

For now, what you can do is to take care of your body like what I advice to all my friends, non-poz or poz alike. It is unfair for our bodies to be invaded by any infection all because of our carelessness. 

Third, I want to thank you for reading my entries. The purpose of my blog is really to educate others while I educate myself. I want to be serious all the time because HIV/AIDS is a serious subject matter. I want to be direct with my answers and if I am doubtful, I research first or I ask my doctor. I want to have a positive atmosphere in all my entries because, once you trust your doctors, when you believe in your medicines and ARV's, your life will go back to normalcy again. So why the need for pessimism.

Thank you too for praying for all the poz that I've encountered. I know that if they know you, they would thank you too. I'll also add you to the PozziePinoy's Prayer list on my next entry.

Life is now becoming more fruitful and having AIDS for me is turning out to be a blessing. I am healthy now but my experience and the wisdom that I gained from it is tremendous that I want to help enlighten others and encourage other poz that there is life ahead despite of the disease. My mission in life is now expanding. I want to help more. I just hope I will be able to do it. But with people around who cares, I know I will be able to, no matter what.




FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund

Saturday, March 17, 2012

Pozziepinoy's Prayer List 1


Still not a pious person but will pray for these poz friends and new poz/non-poz acquaintances. Please help me pray that they may have a healthy life ahead of them:

1. Poz Angel
2. PositHive
3. PozzieBoy23
4. ExofPB23
5. Ryan HIV
6. Iamhivpositive
7. Poz jerry
8. Casually
9. Bohemian
10. Chris HIV
11. Mike HIV
12. Kien HIV
13. Mark HIV
14. Panga HIV
15. Rob HIV
16. Albert HIV
17. Turvey HIV
18. Mao Hiv
19. Jersey
20. Jayjay HIV
21. 2ndLease
21. FB guy
22. Kiev
23. Spongie

If you want to be a part of the list, just email me.

Also, to those who are already on the list help me pray for everybody. Thanks.




FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund



2087 On ARV's


I just read this on PhilStar.com entitled DOH: 2,087 individuals with HIV Undergoing Medication by Sheila Crisostomo. (http://www.philstar.com/Article.aspx?articleId=785894&publicationSubCategoryId=63 ). I hope you don’t mind me reposting this for the sake of our fellow pozzies who are reading my blogs.

Records of the Department of Health (DOH) showed that a total of 2,087 individuals infected with HIV are currently receiving free supplies of anti-retroviral treatment (ART) as of January 2012.

Gerard Belimac, program manager of the DOH’s National AIDS/Sexuality Transmitted Infection, said that although there are 8,576 HIV cases, including 975 patients with full-blown AIDS recorded from 1984 to January 2012, not all of them need ART.

“The 2,087 cases (represent) 95 percent requiring ART. The remaining five percent did not go back to their doctors after finding out that they are infected with HIV. It is much better if they can go regularly to our treatment hubs,” he said.

Susan Gregorio, head of the multi-agency Philippine National AIDS Council, said HIV patients should take ART if he has “opportunistic infections” that could worsen their condition.

Those with HIV are vulnerable to infections or illnesses that are called “opportunistic infections” because they take advantage of the weakening of the immune system. Tuberculosis and other pulmonary diseases are the most common opportunistic infections that hit an HIV patient.

Gregorio said that based on World Health Organization (WHO) standards, an HIV-infected individual should be placed on ART if his CD4 count, a measure of immune system strength, goes below 300 cells/mm3.

“It is important for those who are in these conditions to take ART because it will suppress the multiplication of the virus in their bodies,” she said. Otherwise, they will advance to AIDS.
Gregorio urged HIV-infected individuals to religiously go to treatment hubs every six months to closely monitor their conditions. The free ART are provided by the DOH and the Global Fund to Fight AIDS, Tuberculosis and Malaria, an international financing organization created to combat these three most devastating diseases in the world.

The treatment is available at the Baguio General Hospital and Medical Center, Ilocos Training and Regional Medical Center, Cagayan Valley Medical Center, Jose B. Lingad Medical Center, San Lazaro Hospital, Philippine General Hospital, Research Institute for Tropical Medicine, Makati Medical Center, The Medical City; Bicol Regional Training and Teaching Hospital, Western Visayas Medical Center, Corazon Locsin Montelibano Memorial Regional Hospital, Vicente Sotto Memorial Medical Center, Gov. Celestino Gallares Memorial Hospital, Zamboanga City Medical Center, and Southern Philippines Medical Center.

Patients undergoing ART would have to take the medication for life. They are given two tablets per day at a cost of P1,500 to P3,000 a month. Based on the DOH’s Philippines HIV and AIDS Registry, there were 212 new cases of HIV in January 2012, including four AIDS cases. One of the four AIDS cases was confirmed to be a seven-year-old boy who contracted the virus while he was in his mother’s womb. The boy has died. Of the 8,576 cases, 342 have died. A total of 7,854 got infected through sexual contact while 268 were through needle sharing among injecting drug users. Mother-to-child transmission accounted for 56 cases while blood transfusion for 20 cases. 

Well, Thanks for this article Sheila. I belong to the 2087 cases who take the ART (ARV's). Thank God! I am proud to say that I am healthy right now!




FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund



Thursday, March 15, 2012

Love Fund in Action


Just texted Ate Ellen a few minutes ago and I asked if there are patients already that are being supported by the Love Fund. She said that the Love Fund was able to help out an HIV/AIDS patient with CMV rhinitis. The Love fund was able to finance the meds which was Php 3,000 per bottle. She also said that there are also patients with PTB and anemia that they were able to support. I am so happy.

The Love Fund is a project of Dr. Ditangco to help those who have financial difficulties with the fees of the initial lab tests or medicines for OI's.

I am now calling for help to support this great cause. Most of the emails that I receive complain about their financial problems. Some can't afford the initial lab workout. Some can't even afford their CD4 test.

If you want to help out our HIV/AIDS brothers and sisters, please donate. Any amount will do. I can send you the details of the Love Fund and its account number by emailing me at pozziepinoy@yahoo.com. If you are going to RITM-ARG, please approach Ate Ellen or any staff in ARG and tell him or her that you want to donate to the Love Fund.

Please, please help.




FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund

PhilHealth Contribution


I just called the PhilHealth office today and asked if it is true that there will be an increase in the PhilHealth monthly contributions. I was informed by the staff that it is true. The increase is 100%, from the current P100, it will be P200 by July 2012. I hurried and checked my current payment status and I am still paid up to September of this year. I called again PhilHealth and asked if I can do advance payment and the staff said that it is ok.

I then took out my PhilHealth ID and produced an authorization letter for my helper. I will be paying for Php 3,900 today for the current fee. That will cover up to December of 2015.

PhilHealth is very important to people with HIV/AIDS because starting January of 2013, our ARV’s will all be covered by PhilHealth. This means we will all be required to present our PhilHealth payment receipts every time we ask for our refills. 

So what are you waiting for then? Pay your PhilHealth now while the rate is still low.




FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund


Wednesday, March 14, 2012

"Cleansing Pill"

My outlook in life is so positive! Even for a pill that causes me to have stomach upset once every week.

For 6 months now, I have been taking azithromycin, my antibacterial medicine which I take once every week. It is prescribed for the prevention and treatment of Mycobacterium avium complex (MAC) in persons with advanced HIV infection. It also works in preventing other kinds of bacterial infections in people with HIV.


However, Along with its desired effects, azithromycin may cause some serious unwanted effects. Treatment with this medicine should be stopped and a doctor should be notified right away if the patient has any of the following after receiving the intravenous form of azithromycin: pain, redness, and swelling where the injection was given. In a few rare cases, azithromycin has caused severe reactions. Individuals should stop taking this medicine and notify a doctor right away if they have any of the following symptoms of a severe reaction: abdominal tenderness; diarrhea (severe and watery or bloody); fever; joint pain; severe stomach cramps or pain; skin rash; swelling of face, mouth, neck, hands, and feet; or trouble breathing.Other side effects may not be serious and may lessen or disappear with continued use of azithromycin. Less serious side effects include mild diarrhea, nausea, stomach pain, or vomiting. Individuals should tell a doctor if these side effects continue or are bothersome.


The reaction of azithromycin to me is gastric pain and diarrhea which happen 3 hours after i take my usual dose of 1250mg.  This would last for a good 3 hours but will abruptly stop after I move my bowel. 


I know this medicine, together with my co-trimaxazole, is doing great wonders to me. I am being positive about it because at least once a week, it "cleanses" my gut system. This is better than any cleansing diet I've tried before. It is just a matter of changing perspectives. 


I am happy then, with my once a week "cleansing" pill.







FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund



Positivism 2








FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund

Positivism




*** Please donate to the LOVE FUND. It is for the benefit of the indigent pozzies that are in dire need of financial help especially for their initial lab tests and OI medications. This is a project of Dr. Rossana A. Ditangco.

If you want to donate:

1. Deposit your cash donations to:

                BDO Savings Account Number: 1420060188
                Account Name:  Rossana A. Ditangco

2. Personal cash donations to RITM-ARG and look for Ellen Domingo or Maram Bartolome 

Please email me at pozziepinoy@yahoo.com. I will give you the details of the LOVE FUND. Monthly updates on the beneficiaries of the LOVE FUND will be posted in my blog.


Thank you so much!