The official blog of The Project Red Ribbon Care Management Foundation, Inc. (TRR).

  • TRR LOVE FUND

    TRR Love Fund is the arm of the foundation which provides medical assistance to the financially challenged PLHIV.

  • Care assistance for HIV Test

    The Care Assistant Program involves assistance to HIV testing and HIV and AIDS Treatment hubs in the Philippines. Our volunteers schedule the client to the clinic or hub, assist with the procedure in the clinic or hub and conduct peer counseling

  • HOTLINE ASSISTANCE

    With the TRR Hotline Numbers, our volunteers answer concerns and inquiries about HIV and AIDS, do counselling, refers clients to nearest HIV Testing facility, HIV and AIDS Treatment Hub and government and NGO organizations for support

  • PEER COUNSELING

    The foundation volunteers conduct one-on-one counseling either on the phone or in person. They also conduct group counseling

  • SUPPORT GROUP TALK

    The support group talk (SGT) is a program that involves giving HIV lectures by guest speakers, discuss topics about HIV, care, treatment and support, discussion issues related to HIV

  • OUTREACH PROGRAM

    The foundation's outreach program is geared towards providing support to our fellow PLHIV's in the HIV and AIDS Treatment Hubs. Volunteers hand out of donations of medicines and special gifts to PLHIV, give inspirational talks by invited guests to a group of PLHIV, bonding over snacks or meal, visit the sick who are confined in the hospital

  • Referral System

    As part of treatment, the foundation's referral program involves our volunteers referring clients to specialized doctors who are HIV friendly. The foundation has it's own list of specialty doctors of low cost for the indigent PLHIV.

  • Online Support Group

    The foundation has a private Online Support Group in facebook. This group of advocates, supporters, counselors, health Workers and PLHIV

  • Home Health

    Aside from client counselling, the foundation volunteers also do family counselling and home visitation for awareness and continuance of care.

  • Health Fitness

    The foundation believes in holistic approach to treatment and care, thus inclusion of these programs: yoga, dance, swimming, jogging and running, boot camp workouts

  • EVENTS

    As part of awareness and education program, the foundation organizes its own national events to coincide with the international AIDS events: World AIDS Day and International AIDS Candlelight Memorial

Thursday, July 12, 2012

Real Angel


Today at 8am, I met a real Angel. He picked me up and we went to RITM-ARG to give donations for the 2 year old HIV baby. Actually all those were his donations... diapers, formula milk, toys and towel. He found time and effort to gather them from friends and me a mere courier... helping him to deliver the goods.

We met Dr. Ditangco at RITM-ARG and "Angel" and her talked in her small clinic cubicle while I went out to see two pozzies from twitter, positivecutie and impopoy21. I talked to them and positivecutie's mom for awhile.

When "Angel" came out, we went out to get the goods from the car and returned to RITM with them. "Angel" donated some cash for The Love Fund too. When we came out, I once again sat with the twitter friends and gave words of encouragement especially to positivecutie and his mom.

We left RITM-ARG around 9:30am and headed straight to my place where he dropped me off.

Sometimes we meet people by chance or by accident. But these encounters are not just mere coincidences. To me meeting "Angel" is not an accident. I know there is a purpose to it.

To you "angel" thank you so much! You have such a great heart!


                                                         


FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund

Wednesday, July 11, 2012

Email 24 & 25




Hi,

I was reading your blog and I came across email 19. I can relate to him because I’m also working out of the country. 

I would like to know if we are on the same country and if we can get in touch through email so he can share his experiences to me in terms of the testing procedure.

I need to be tested this July since it is the XXX month since I had my last risky sex. I tested negative last May but the doctor said that I should be tested again for confirmation. 

I am still thinking twice if I will do it here or be back in Manila because my employment just like email 19 will also be at risk... Worse is, the humiliation of escorting me back to my country. On the other side of it, I want to save the amount that I will spend in going home and just send it to my family instead. 
If you can send my email address to him so we can get in touch is greatly appreciated.


Thanks,
SXXXXXA


POZZIEPINOY’S REPLY


Hi SXXXXXA, 


Ok I already sent a letter to him with your letter attached to it. I'll wait for his reply first before he agrees to get your email address. I hope that is ok with you.


Stay healthy,
Pozziepinoy


THE OTHER POZZIE’S REPLY:


Hi Pozziepinoy,

I wish good health to all of us. 

Sure, you can give it to him.  Who knows we might know each other also.  I actually need someone like me to talk to over here. Almost everyday I wish that I'm already in Manila where I could be safe.  I'm losing appetite, I'm losing weight and I can't sleep well.  I'm not worrying of my HIV but the fear inside me is killing me.  I already submitted my resignation ....  My reason was I need to seek medical attention because lately I'm not feeling well.  Last XXX when I have my blood test for my insurance, it turns out that my XXX is little higher than normal and I have high XXX and I use that as my alibi.  My leave is already scheduled at the end of XXX and I don't wanna go back here anymore.  Please Pozziepinoy, help me.  I need a doctor who can give me a certification that I have to stay in the Philippines for an extended period of time.  I just need a letter to present to my employer that I'm needing medical attention so that they can cut short my notice period.  I can actually escape and get MIA but I don't want to do that.  A lot of people knows me here and in the Philippines and whatever happens to me here or whatever I will do here definitely I won't be able to explain to all of them. It's too much. I want to fix this so that I can focus on my health and help others too.  I tried to donate to the love fund but the enrollment in BDO online banking requires activation which I can't do at the moment.  I will personally donate when I go home.

I'm planning to book a flight early XXX morning.  I want to visit the hub right away.  I only have 1 week to stay and I'm hoping to find someone who can help me with the problem with my employer. 

I would like to meet you as well.  I have a lot of things to tell.  I have everything inside my chest and I don't know until when I can get hold of it.

By the way, I got teary eyes when I saw my name on your prayer list.  It means a lot to me. Thank you very very much. 



XXXX


POZZIEPINOY’S REPLY



XXX,


Thanks for the fast reply. I will definitely give your email address to him so you guys can talk. With our condition, it is really better to speak our hearts out so that there’s no build up of emotions. We have to face our condition no matter what but it is really best if there is someone who can understand, especially if the person is on the same boat as us.

Regarding you problem, let us discuss it when you come back home. My number in the Philippines is XXXXX. Please text or call me when you are in Manila. Let’s talk about your problem and discuss how you would go about getting tested and or treatment. I will introduce you to my doctor too.
For the meantime, don’t think too much and just stay positive. I know everything will be alright. 
You have someone here who will guide you.


Stay healthy, 
Pozziepinoy



FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund                                                    

Our Next Steps!

Ok. Our health status has already stabilized. Our CD4 counts are already high after years of taking ARV’s. Our Viral Load are almost undetectable. What’s next for us then? 

We all know that our next goal is to really wait for the cure for HIV but of course, that will still take time. For the meantime, the most important thing is remembering that we still have HIV and that there are a lot of good things that we can do aside from our normal day to day living.

1. Focus on our health. No matter what this is our lifelong priority. Even though our immune system has already rebounded, we still have to take care of our health. Remember, it is the only thing we have and losing it would be costly. Have a proper diet, exercise and activity, regular leisure and recreational activities, relaxation, emotional and vocational growth ---- these are all components of being a healthy individual.

2. Volunteer. We have wisdom from our experience. We can already contribute to society with our knowledge. Let’s put everything into action. Volunteer to HIV organizations, may the organization be geared towards prevention, or treatment or any counseling or support groups. We are already basically the arm towards educating the society so why not make ourselves useful. We can also help out in raising funds for different HIV purposes. We can assist with HIV testing, leafletting and other information dissemination campaigns or lobbying our government for additional HIV/AIDS funds. We can also write to newspapers and magazines about our experience to help educate our fellow pozzies and the society in general. You can also join marches and social gatherings to voice out the problems of the HIV community.

3. Become a counselor. If you have more time, attend seminars and training and become a certified HIV counselor. There are a lot of patients who need counseling and by giving time to them and assisting them, we for sure are saving their lives.

4. Create your own support group. You can meet people and have a group counseling session, book review, yoga class, recreational activities, group outings, bootcamp exercises, etc. Social media is another way of making an anonymous group. Make twitter and facebook accounts wherein new and old pozzies alike can have interaction and have frequent discussions about HIV and their daily lives.

5. Donate. If you have extra funds, donate money or goods to your hubs and HIV organizations. You can donate money or in kind for medicines for patients, medical equipments and materials, office supplies and equipments. The Love Fund is another venue wherein you can channel your money for the benefit of the indigent pozzies needing of financial assistance. If you have connections, you can help patch up your hubs with different government and non-government organizations for assistance. You can donate money to HIV organization for the prevention of HIV/AIDS. 

6. Be an extended family. “Adopt” a pozzie. You can do this by personally assisting a new pozzie in dealing with his illness. You can spend time with the person, making daily calls, checking on his ARV’s or even going with him to the hub for support. You can communicate with him all the time until the pozzie is up and about with his health. With your knowledge, you can advice on proper diet, exercise, sleep habits and give techniques in boosting up the immune system.

7. Live your life to the fullest. This is the greatest thing that we can do to humanity...that by showing to everyone that even though we have HIV we can still live normal, happy and productive lives!


There are so many things that one can do. The power now is n our hands. Life with HIV is great by looking at a different perspective. We didn’t get the disease for no reason at all. Now, we have to capacity to make our lives more spectacular!


FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund

Email 23




Hi Pozzie,

Please tell me what BDO branch it is. I'm going to send some amount. I don't earn that much but I'll try to sacrifice some things like eating outside or going out with friends to maintain my pledge.
Thank you.

XXX


POZZIEPINOY'S REPLY


Hi XXX,


It's in BDO Rockwell Ortigas Branch, Sir. Thank you for your donation.


Pozziepinoy




FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund


Prayer List 6



I will be sending the PozziePinoy's Prayer List again to the heads of churches here in the country and in two church organizations in the United States this Friday evening. I have added new pozzies in twitter and I would like to add them have to this list. I also indicated a priority list for those who are in need of immediate prayer!

Please email me fast or just ask for a name inclusion in the comment box if you want your name or your friend's name to be included here.

In need of prayers: to watch over their health, to help them keep a positive outlook in life despite HIV, to help them face all health fears, to guard them against possible infections.


PRIORITY PRAYERS:

1. HIVPLUS2012
2. Potchini2
3. PRINCE2
4. GPHIV
5. Positivecutie


Daily Prayers:

1. Poz Angel
2. PositHive
3. PozzieBoy23
4. GeekPozzie
5. Ryan HIV
6. Iamhivpositive
7. PozJerry
8. Casually
9. Bohemian
10. Chris HIV
11. Mike HIV
12. Kien HIV
13. Mark HIV
14. Panga HIV
15. Rob HIV
16. Albert HIV
17. Turvey HIV
18. Mao Hiv
19. Jersey
20. Jayjay HIV
21. 2ndLease
21. FB guy
22. Kiev
23. Spongie
24. iampositive25
25. Paranoid Freak
26. Marky
27. Sam HIV
28. Carlo HIV
29. Rob 2WL
30. Tipsyheaven1
31. Aqua HIV
32. SG HIV
33. RenalCB HIV
34. FBguy
35. FBfriend
36. MonCMV
37. LetBC
38. Dark Shadow29
39. AeonPaul
40. Reon
41. GP
42. lumineux08
43. finding goodness
44. matt_squid
45. rebornpositive2
46. seapositivo
47. Pozandliving
48. PozDanny
49. Potchini2
50. Chemistry Guy
51. Positivecutie
52. Jerin0627
53. squidworx
54. IamGrimReaper
55. Impopoy21
56. 21May2012
57. RedSon2828
58. positivejuan
59. PinoyPositive
60. IamPoziHiv
61. Iam Plus2012
62. Huntme
63. Eyes_closed120
64. AkoPoz
65. Sayke Delic
66. Dark Incognito
67. English
68. PinoyPositive
69. IamHIV
70. Jakepositive

                           

                              
  
FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund                                                      

Email 22




Dear fellow pozzie,

First I want to say your blog has the most volume of information a PLHIV can read all in one site! It surely helps people especially those who are not yet essentially informed of the issue like me. I want to thank you for that. 

I was diagnosed last XXX and chose PGH as my hub. All my initial baseline tests were normal except for low hemoglobin level (slightly anemic) and high triglycerides but normal cholesterol (slightly conflicting). CD4 count was 17. I started anti fungal (fluconazole) for thrush for 7 days. Took 600 mg cotri everyday and 1250 mg azithro once a week, and started ARV: 3TC, EFV, Lamivudine last XXX. Unfortunately last XXX (exactly 1 week after taking ARVs) I had cough with phlegm but no fever at all. No redness of skin either. A few days before that I had runny nose and endless "singa" which I think immediately progressed to a cough with phlegm. I added Lagundi herbal capsule (3x a day) in my meds last XXX. It's been 5 days since I had the cough and my main problem is my ID doctor is available for consultation during Mondays only. The nurse is still trying to contact my ID doctor for a special consultation day for me within this week so I don't have to wait for Monday next week... I'm a bit worried because of my CD4 count... On the lighter side I gained 4 pounds already because of increased appetite and no more diarrhea.

I was thinking of switching hubs to RITM but a "not so good" incident happened to me. I chose to have my viral load, PPD and RPR at RITM. Some guy from the reception of RITM ARG told me that ARG is better than PGH in terms of ambiance, care, etc... When I was about to get my RPR test which usually takes less than 2 days to finish, he told me to go back after 1 month and I got so fruuuuustrated with it because of the protocol PGH is requiring me before I could take ARV (no complete baseline tests, no ARV), knowing that I have 17 CD4 count! Inside my head, I had the impression that this guy is so incompetent he literally compromised my existence in this world! RPR turnaround time is 1 month, but not RPR! I should have taken my ARV a week earlier. 

I think RITM is a great choice and I am thinking about switching hubs because of proximity and availability of doctors but it bothers me that if I switch to RITM and see his face every time I go there, it would really piss me off. The thing is, I get irritated whenever I talk to him and telling me what to do and whatsoever. Sorry for my rants but I just really have to tell you this so I could move on with the issue.

Thank you very much!


XXX


POZZIEPINOY'S REPLY


Hi XXXX,


Thanks for your email. Thanks for reading my blog. It is a collection of all my researches which I share to everyone. I am glad that somehow, by sharing them, people learn something about our disease and how to fight it.

I am glad that you are on your ARV’s already. Regarding your cough, get it checked fast. This is what my pulmo and my ID doctors told me before. If the CD4 is so low, we have to go to the doctor fast as a simple cold can turn to pneumonia. So if I were you go to your hub fast. I bet there are other doctor who can assist you in case your doctor is not there.

Regarding your Lagunda herbal capsule, make sure you had a go signal first with your doctor before you took it. Sometimes, herbal supplements can have an affect on the ARV’s so make sure to consult them first before taking them. 

About the RITM guy, well, don’t worry about it. Always ask the doctor there first before anything else. By the way I already scheduled you with Dr. Ditangco and she is willing to take you in if you want to switch hubs. Like what I usually say, proximity to a hub is the most important thing to consider when choosing so you might as well switch to RITM since it is nearer to your home.

I already gave you my number so please always ask me if you need help. You can also email your concerns again so others may benefit from your situation.

Once again, thanks again for the email and always, stay healthy.


Pozziepinoy


                                                             

FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund

Tuesday, July 10, 2012

Disclosing HIV Status


You are a pozzie. Either you just found this out recently or you knew this a long time ago. But whether it is still fresh news that you are beginning to accept or a status that you’ve been dealing with for a while, there will always come a situation where in you will be dealing with one scenario, which is the point of disclosing or not to disclose your status, to tell others that you are infected with HIV. In most situations you would want to be honest with people and at the same time protect your right to privacy.

But who can you tell? Have you ever been to that point when you want to tell somebody but you don’t know how much information to say? Do you want to tell your partner, your parents, friends or a person you are currently dating? How about your your past sexual partners? Can you disclose your status even though there is fear that you will be blamed in case they already have it? Do you have to disclose to other doctors and other health care providers your status, like your dentist, your dermatologists, your eye doctor or when you will be having surgical operations? Would you be able to accept their reactions? Do people have the legal right to ask about your status, or deny you care if you are a pozzie? Have you ever experienced a situation when you are legally required to disclose your status because of employment, or a requirement in any government office?

With all these questions, I can say that there are no right answers. It boils down to knowing when and what information you need to provide and your comfortability level with that person you are going to tell.

Time is an important factor. Just don’t rush into disclosing yourself. Give it some thought first before telling someone. I know that sometimes we feel that we can tell everyone especially when we first have accepted the truth. But don’t be overwhelmed by the situation. You have a lifetime to disclose if you need to. The fact of the matter is that we need to be selective about who the persons who need to tell and when is the best time to tell it. The result of disclosing can be a happy one or something that we tend to regret later on. Still it boils down to how ready we are to accept whatever the result of disclosing is.

Take it easy. I know you will encounter situations wherein you want to disclose yourself. Sometime you feel that you have to, and tell it fast to family members, employers, co-workers and friends. It is a natural reaction. However we have to think too that disclosing can create new problems. Even though for the past decades there have been improvements with the level of awareness of people, still, there is still stigma attached to HIV and to the people are infected with it.

Of course it is a choice we all have to make. Knowing all the consequences, the stigma and the level of understanding of some people, we still have to disclose our status one way of the other to families, friends or even coworkers.

But why do we have to disclose?


A. Family members
  1. For support system: physical, emotional, social and financial
  2. For financial assistance when it comes to health
  3. For assistance with precautionary measures
  4. For ARV adherence
  5. For avoidance of opportunistic infection
B.  Friends
  1. Emotional and social support
  2. Rechannelling of energies to productive means
  3. For ARV adherence
  4. for avoidance of opportunistic infections
C. Sexual Partners
  1. It is in the law. From the Aids Law in the Philippines Section 34. Disclosure to Sexual Partners - Any person with HV is obliged to disclose his/her HIV status and health condition to his/her spouse or sexual partner at the earliest opportune time.
  2. For prevention of HIV transmission 
  3. To protect ourselves from opportunistic infections
D. Co-workers
  1. Social support
  2. ARV adherence
  3. Understanding of health condition
  4. Prevention of infections
  5. For understanding health limitations
E. Other health providers
  1. Precautionary measures
  2. Prevention of transmission
  3. Prevention of opportunistic infections
  4. Understanding current health status can be influenced by HIV status and medications
To disclose or not to disclose? That is the question. There is no right answer to this. But there is always the right time, considering the maturity of the person, the level of awareness and understanding and need to do so.



© Copyright. All Rights Reserved by Pozziepinoy 2012



FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund

Monday, July 9, 2012

Be Thankful!



Before you go to bed tonight or wake up in the morning, always .... 

BE THANKFUL!
  1. You are alive!
  2. You have a family who loves you
  3. You don’t have infections
  4. If you have infections, there is treatment!
  5. If your CD4 is low, it can go up
  6. ARV’s are free in the Philippines courtesy of the Global Fund and next year, by PhilHealth.
  7. There are treatment hubs all over the country.
  8. There are good HIV specialists.
  9. Our country has strict laws about HIV/AIDS discrimination especially when it comes to employment
  10. You have friends who can understand your situation.
  11. Consultation in treatment hubs is free.
  12. PhilHealth has the Outpatient HIV/AIDS Treatment (OHAT) package which provides free lab tests and CD4 testing
  13. There are support groups in the country
  14. There are people who can help you with financial health support
  15. HIV is not a death sentence anymore
Always be thankful! Smile because living with HIV/AIDS is still living!


                                       
   FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
DONATE to The Love FundThe Love Fund