The official blog of The Project Red Ribbon Care Management Foundation, Inc. (TRR).

  • TRR LOVE FUND

    TRR Love Fund is the arm of the foundation which provides medical assistance to the financially challenged PLHIV.

  • Care assistance for HIV Test

    The Care Assistant Program involves assistance to HIV testing and HIV and AIDS Treatment hubs in the Philippines. Our volunteers schedule the client to the clinic or hub, assist with the procedure in the clinic or hub and conduct peer counseling

  • HOTLINE ASSISTANCE

    With the TRR Hotline Numbers, our volunteers answer concerns and inquiries about HIV and AIDS, do counselling, refers clients to nearest HIV Testing facility, HIV and AIDS Treatment Hub and government and NGO organizations for support

  • PEER COUNSELING

    The foundation volunteers conduct one-on-one counseling either on the phone or in person. They also conduct group counseling

  • SUPPORT GROUP TALK

    The support group talk (SGT) is a program that involves giving HIV lectures by guest speakers, discuss topics about HIV, care, treatment and support, discussion issues related to HIV

  • OUTREACH PROGRAM

    The foundation's outreach program is geared towards providing support to our fellow PLHIV's in the HIV and AIDS Treatment Hubs. Volunteers hand out of donations of medicines and special gifts to PLHIV, give inspirational talks by invited guests to a group of PLHIV, bonding over snacks or meal, visit the sick who are confined in the hospital

  • Referral System

    As part of treatment, the foundation's referral program involves our volunteers referring clients to specialized doctors who are HIV friendly. The foundation has it's own list of specialty doctors of low cost for the indigent PLHIV.

  • Online Support Group

    The foundation has a private Online Support Group in facebook. This group of advocates, supporters, counselors, health Workers and PLHIV

  • Home Health

    Aside from client counselling, the foundation volunteers also do family counselling and home visitation for awareness and continuance of care.

  • Health Fitness

    The foundation believes in holistic approach to treatment and care, thus inclusion of these programs: yoga, dance, swimming, jogging and running, boot camp workouts

  • EVENTS

    As part of awareness and education program, the foundation organizes its own national events to coincide with the international AIDS events: World AIDS Day and International AIDS Candlelight Memorial

Wednesday, April 11, 2012

Email 10: Brave Soul


Hi pozziepinoy!





I thank God for being able to browse your blog. I thank Him for a person like you who gives hope to all of us - both HIV positive and negative Pinoys.

I am very worried at this time for I am experiencing symptoms which can be caused by HIV infection. I hope this is all because of me being paranoid. Anyhow, I am inspired by how you are using technology to help others. In particular, I am moved by your "Prayer List." Can you include me in your list? I hope to have myself tested this Friday or next week. I have faith everything is fine.

Thank you very much!

Sincerely,
worriedabouthiv





Hi Worriedabouthiv!





First of all I would like to thank you for reading my blog. I appreciate how you mentioned my giving hope to all which is really what I am doing. I just want to reach out and tell everyone that there really is HOPE as long as we follow our doctors and we believe that we are all going to be fine.

I salute you for being brave to take the test. I know a lot of people who are hesitant to take it even though they know that the cases of HIV has been growing immensely in the country. I am so proud of you, unlike me who took it when I was already sick and had experienced both the physical and financial burden of the disease. 

It is ok to be worried. It is better that way because in acknowledging it, in knowing the fear, you are obliged to do something about it. When I got sick, I was in denial most of the time. I kept on telling myself that I was sick because of something else. I didn’t want to look at the big picture. I am an educated person but with denial, I turned a blind eye. I was stupid to not even think about it. You are smarter than me. And BRAVER!

It is my pleasure to add you in my PP Prayer’s List. It is all about us. With your faith, like what you said, I know everything will be fine!

Keep me posted.


Pozziepinoy




FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
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Tuesday, April 10, 2012

Live!

Sorry for not posting any entries during the Holy Week. Was so busy living my life.
Well, life goes on, now that vacation time is over. A lot of pozies have been quiet too but some are still having issues with their health. I really do wish them well.

Two pozzies that I’ve been texting were somehow getting frustrated with their health but I told them that everything will be alright as long we all do our parts. We just have to follow whatever our doctor tells us to do and live a healthy lifestyle. 

I am not a religious person but during the Holy week, I felt that faith can really do wonders for anybody, and everybody. For all of us pozzies, it is important that we believe in our doctors and that we believe in our medicines. Faith in believing that having a healthy lifestyle can really make a difference in our lives. 

To all pozzies out there reading my entries, I am grateful and happy that I am able to reach out to you. I just wish that we learn from our mistakes and start living our lives to the fullest, in a healthy manner.





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Wednesday, April 4, 2012

To Disclose or Not?

I was asked by a fellow poz before if he should disclose to a person who he is dating at the moment his HIV status. I told him not yet. I told him to know the person first before even revealing himself to him.

I think I am right. Tag once told me that the only thing that is punishable by law in any relationship is by not disclosing his HIV status when there is a possibility of infecting his partner. In the Republic Act 8504 or The Philippine AIDS Prevention and Control Act of 1998, it states:

Article VI SEC. 34. Disclosure to Sexual Partners – Any person with HIV is obliged
to disclose his/her HIV status and health condition to his/her spouse or
sexual partner at the earliest opportune time.

I know it is hard for most of us to disclose especially to somebody who is potentially a partner whom we think we can spend the rest of lives with. But it is better to be honest. With our disease, comes a great responsibility not to spread it around anymore.

HIV stops with us and if the person won't accept us for who we are and what we have, then we should be thankful that we at least know from the very start the kind of relationship we are getting into in the first place.




Credit:
The Philippine AIDS Prevention and Control Act of 1998




                                                                    

Republic Act 8504

I received 6 emails already by our fellow Filipinos who are working abroad. All of them are HIV positives and are planning to return back to the country as soon as their contract expires. Where they are working, it is compulsory to take the HIV test as it is required for re employment. They took the test voluntarily and now they are scared to do the compulsory test that their current companies require them to do. Looking at their future, they are so worried that there won’t be any jobs here in the country as soon as they come back here. 

I know that here in the country it is against the law to have compulsory HIV testing as a prerequisite for employment and that there are only certain jobs that really require it.

To be factual, I researched about the Philippine AIDS Prevention and Control Act of 1998

Key Features of Republic Act 8504: Provisions of RA 8504 relevant in the workplace
Article I: Education and Information - Section 6: HIV/AIDS Education in the Workplace
  • All government and private employees shall be provided with standardized basic information and instruction on HIV and AIDS.
  • HIV / AIDS education shall be integrated into orientation, training, continuing education, HR dev’t programs, etc
  • Each employer shall develop, implement, evaluate and fund a workplace HIV and AIDS education and information program.
  • In collaboration with the DOH, DOLE shall oversee the anti-HIV/AIDS campaign in all private companies.
Article III: Testing, Screening and Counseling: 
  • Section 16: Prohibition on Compulsory HIV Testing
    Compulsory HIV testing as a precondition to employment, admission to educational institutions, the provision of medical service or any kind of service shall be deemed unlawful.

    Exceptions to Prohibition on Compulsory HIV Testing
    • When charged with crime under the Revised Penal Code, Death penalty Act, Anti-rape Law
    • When resolving issues relevant to the Family Code
    • When complying with requirements of organ or blood donation
    • Reportorial requirements
    • When informing health workers directly involved in treatment and care of persons with HIV/AIDS
    • When responding to legal proceedings where the main issue is the HIV status of a person
  • Section 18: Anonymous HIV Testing
  • Section 19: Accreditation of HIV Testing Centers
  • Section 20: Pre-test and Post-test Counselling
Article VI: Confidentiality
  • Section 30: Medical Confidentiality
    All health professionals, medical instructors, workers, employers, recruitment agencies, insurance companies, data encoders, and other custodians of any  medical records, file, data or  test results to observe strict confidentiality particularly the identity and status of persons with HIV

    Release of HIV/AIDS Test Results will only be allowed to the following parties:
    • Person who was tested
    • Parent of minor if minor
    • Legal guardian of mentally handicapped person
    • Person authorized to receive results for AIDSWATCH
    • Justice of Court of Appeals or Supreme Court
  • Section 34: Disclosure to Sexual Partners
    Any person with HIV is obliged to disclose his/her HIV status and health condition to his/her spouse or sexual partner at the earliest opportune time.
Article VII: Discriminatory Acts and Policies - Section 35: Workplace Discrimination
  • Discrimination in any form from preemployment to post-employment, including hiring, promotion or assignment, based on the actual, perceived or suspected HIV status of an individual is prohibited. Termination from work on the sole basis of actual, perceived or suspected HIV status is deemed unlawful.
  • Persons with HIV/AIDS already employed by any public or private company shall be entitled to the same
    employment rights, benefits and opportunities as other employees.
  • HIV infected employees shall act responsibly to protect own health and prevent HIV transmission
  • Acts of discrimination shall be reported to DOLE or to CSC
Penalties
  • Misleading information / advertising
    2 months to 2 years imprisonment
  • Knowingly & negligently infecting others in the practice of one’s profession
    6-12 years imprisonment, fines, suspension or revocation of license/accreditation
  • Violations on medical confidentiality
    6 months to 4 years imprisonment, fines, suspension or revocation of license/accreditation
  • Discriminatory acts & policies
    6 months to 4 years imprisonment, fines of not over P10,000, revocation of license/permits
Mandate of the Philippine National AIDS Council
To be the central advisory, planning and policy-making body for the comprehensive and integrated HIV / AIDS prevention and control program in the Philippines.



Credit:
Philippine AIDS Prevention and Control Act of 1998




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Tuesday, April 3, 2012

HIV and Kidney Problems


I have heard that 2 pozzies have kidney problems. One though is a severe case as both his kidneys are failing. The other poz is having his lab tests done as he has problems with urination. I wish them well both. This is not to scare my readers but always remember that wisdom comes from learning from the experiences of others.

I researched about kidney problems related to HIV and I saw this from AIDSInfoNet:


WHY SHOULD PEOPLE WITH HIV CARE ABOUT KIDNEY DISEASE?

HIV disease can cause kidney failure due to HIV infection of kidney cells. This is known as HIV-Associated Nephropathy or HIVAN. Other causes of kidney disease include diabetes and high blood pressure. These problems, especially HIVAN, are much more common in African-Americans, Taking some medications used to treat HIV infections or related health issues can also cause kidney disease. Kidney problems can lead to end-stage renal disease (ESRD) or kidney failure. This can require dialysis or a kidney transplant.

The rate of kidney disease in patients with HIV has gone down significantly since the introduction of modern antiretroviral therapy (ART.) However, about 30% of people with HIV may have kidney disease. If kidney disease advances, it can cause  heart disease and bone disease.

WHAT IS NORMAL KIDNEY FUNCTION?

The main job of the kidneys is to filter out waste products. They reabsorb what is needed and remove the waste in urine. The most important waste products are excess sodium and water. . Each kidney contains about a million filtering units called nephrons. They:
  • eliminate wastes from the body,
  • regulate the volume and pressure of blood, and
  • control levels of electrolytes and blood acidity.
HOW DO I KNOW IF THERE ARE PROBLEMS WITH MY KIDNEYS?

Unfortunately, most symptoms of kidney disease only show up when a large part of kidney function has already been lost. Swelling of the legs or face or changes in urination may occur. Other symptoms, such as fatigue and loss of appetite, can be confused with other health problems.

Your health care provider should monitor your kidney function, even if you have no symptoms. The most common test of kidney function is a urine test. A simple “dipstick” is used. This test checks levels of protein, sugar, ketones, blood, nitrites, and red and white blood cells. Small amounts of protein in the urine show up before kidney disease has caused a loss of kidney function.

Nearly one-third of all HIV-positive people have high levels of protein in their urine. This is a sign of possible kidney trouble.

Other kidney tests include the blood urea nitrogen or BUN, the blood creatinine level and the rate of creatinine clearance.

Blood Urea Nitrogen (BUN) shows up in the blood when protein breaks down. It is normally removed by the kidneys. High BUN levels can be due to a high-protein diet, dehydration, or kidney or heart failure. High BUN levels should trigger a search for kidney disease.

Creatinine is produced by the normal turnover of muscle cells. Blood levels of creatinine are a measure of kidney function. High levels are usually due to kidney problems. Doctors use the creatinine level to see how well the kidneys are working.

Normal laboratory levels of creatinine have to be adjusted for race, age, weight, and gender. The most common formula for adjusting creatinine values is the Cockcroft-Gault formula. Another adjustment formula is the MDRD or Modification in Diet in Renal Disease equation. These provide a measure called glomerular filtration rate (GFR).

Doctors use the GFR to get a better picture of what your creatine level really means. People without kidney disease have a GFR of about 100. As kidney disease takes away kidney function, the GFR falls. People need a kidney transplant or dialysis when the GFR falls to about 15 or less.

The simple screening test of a urine exam for protein is the most sensitive way to diagnose kidney disease. People at risk for kidney disease should have this exam performed at least yearly.

WHAT ARE THE RISK FACTORS FOR KIDNEY DISEASE?

Kidney disease is more likely in people who:
  • Are African-American
  • Have diabetes
  • Have high blood pressure
  • Are older
  • Have a lower CD4 count
  • Have a higher
  • Have hepatitis B or C 
HIV patients should be carefully screened for signs of diabetes or high blood pressure. They should control their blood sugar and their blood pressure as much as possible.

HIV MEDICATIONS AND THE KIDNEYS

Several HIV medications are hard on the kidneys. This includes antiretroviral medications and some medications used to treat HIV-related health problems.

The dosages of several ARVs that are cleared through the kidneys need to be reduced for people who have impaired kidney function as measured by creatinine clearance. Be sure your doctor knows if you have any kidney problems.

DIALYSIS AND KIDNEY TRANSPLANTATION

People with HIV have gone onto dialysis and some have received a kidney transplant. There are concerns about suppressing the immune system following transplant, so most transplant centers only accept people with over 200 CD4 cells and an undetectable viral load. The outcomes for these people appear to be the same as for other people getting kidney transplants.

THE BOTTOM LINE

HIV infection can cause kidney problems that may become serious. Also, people with kidney problems may need to lower the amount of some medications that they take.

Kidney problems don’t really show up as symptoms of disease. It’s important to get the urine checked regularly for signs of trouble.



Credit:
http://aidsinfonet.org/fact_sheets/view/651                                                                      

PNP & HIV


Different acronyms. But one may lead to another.


Party and play or partee and play (PNP or PnP), also known as a chemical sessionchem session, or simply as partying, is a phenomenon and subculture of recreational drug users who engage in sexual activities with one another, either one-on-one or in groups. The term is often but not always used by and associated with homosexuals and men who have sex with men (MSM). The drug of choice is typically methamphetamine, known as crystal or tina in the gay community. It has been called both an "epidemic" and "plague" in the gay community.


I've heard of PNP being offered to lure men in a lot of gay chat sites like in Planet Romeo, Manjam, Grinder and Jack'd (to name a few),  but to be really honest, I never have tried it. Most of the men there would always ask for drugs or poppers and would offer to bring them. I really have no experience on this but from what they told me, it gives them utmost pleasure, prolonging the erection and makes you have an outrageous orgasm. They also said that you can have sex for hours and hours.


Here in our country, these games being played during sexual acts are becoming scary, well up to now. I learned from school before that when you are on drugs, you can't decide anymore what is right from wrong. I still believe in that. When you are under the influence of drugs (or even of alcohol), even though you know that unprotected sex is a no-no, even though you have been "educated" in school that you can get different diseases from unsafe sex, you will still do it because of the extreme feeling of "high" the drugs are giving you. Since the recreational drugs improves sexual performance and longevity, one would want to try it with multiple partners. Everybody becomes beautiful and pleasurable, not knowing the consequences as soon as one wakes up from it.


With the rise of HIV in the country, it is really scary to even think of it. I know that the gay places (especially the vacation "hot spots" in the country during the Holy Week, which they called the Sodom & Gomorrah beach areas) are still the venues for this PNP groups. Imagine just one HIV infected individual can infect a lot of non-HIV individuals in just one session. The domino effect will continue as the other newly infected individuals will pass them to other groups of people doing PNP. Scary, right?


It is better to know the facts. However, when one is really under the influence of drugs, even the strongest of facts can be forgotten temporarily, but with the consequence of a lifetime illness, especially of HIV!




                                                                        
Credits:
http://en.wikipedia.org/wiki/Party_and_play

Miracles Are Happening!

I just need to share this because I am so proud of this poz.

A fellow poz just had his CD4 count yesterday in a private hospital and his CD4 now is 455, after taking his ARV’s for 3 months only! Good job!

When I first started communicating with him, his initial CD4 count was a little below 350. He was scared then. He had personal problems too at that time and I became his "shoulder". I was encouraging him to go to the hub and take the ARV’s while his CD4 is still high because of the fact that the immune system can easily recover when it is still a bit strong. Good thing he listened.

His first cocktail included nevirapine which his body had adverse reactions. He was vomitting and had fever, most of the days. Two weeks later, his cocktail was changed to efavirenz and lamivudine/zidovudine. Like me, he had dizziness with efavirenz at first but completely disappeared after a few days. He was the happy to go to work and lived a healthy life.

Yesterday he was so happy to tell me the result. Everything really paid off. I am so happy for him. I am so happy that another person has recovered.. and fast!


I will continue praying for YOU! You will always be in my PP Prayer's List!





FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
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Monday, April 2, 2012

Email 9: Confused Spirit


“Hello there.

Of all the blogs featured on the HIV+blogrolls, I think yours is catchy.  Your blog doesn't totally revolve around yourself, no pretentions.... just genuine. Your blog is easy to understand because others use sugar-coated English words that's hard to comprehend.

I am living and working in the XXX.

Day one since I arrived I was overwhelmed, I engaged in a promiscuous, risky and unprotected sex....  For 3 years now I still do, until I felt some discomfort in my body. I had this feverish feeling, My body felt hot but I had no fever. A pinching headache, my ears are red hot but without cough or colds. However, my appetite was okay.

I’m not sure, but my instinct tells me that there's something wrong. After a couple of months the feeling of discomfort disappeared then I continued the same sexual routine.This year, I felt my lymph nodes on the left side of my neck enlarged, but without fever. I thought it was my sinusitis. 

I'm still in denial. I want to get tested but I can't do it here, It's a big NO NO. I'm not yet ready to go back, I still have to save enough money plus I don't want to be deported and be harassed and be treated harshly. I'm planning to get my test when I return back to the Philippines maybe at the XXX this year.
I just hope that if I have this illness, it will not progress too soon. As of now the enlarged lump subsided. I always take vitamin c and e plus meds for the colds. 

I still don't know if I'm positive or not. I'm not sure since I only rely on the symptoms that I read on the internet. I hope that before my vacation in the Philippines, if ever I'm ill, I could still be able to leave XXX safe and sound.

I have questions for you.

1.Are the meds expensive or for free? 
2. How about HIV testing does it include the viral load and CD4 test
3. If ever I have this "thing" inside my body, what are the things to do to keep my immune system okay?
4. What were the symptoms you first felt?
5. Since HIV positive individuals are rising in our country, do you feel now the scarcity of ARV meds?
6. Are your fellow pozzies supportive of each other?

Thank you so much and God bless

Dark Incognito”



Hi Dark Incognito.

Thank you for your email. It’s flattering what you said about my blog. I always want my entries that way. Serious and direct to the point. Our disease is a serious matter and I know a lot of people are confused and my readers deserve to be taken seriously. My blog is my diary, a collection of all my researches, and by educating myself, I also educate others. By helping myself, I also help other people.

You have a lot of concerns in your email but let me respond to them one by one.

First, I understand that it is hard for you to get tested there. I have lots of friends who are working and living where you are now and I believe that it would really affect your employment once you find out. I still believe that the best answer to your troubled mind is to get tested but if it really is not possible because of personal reasons, then you can wait until you come back home and have yourself tested here. There are free testing areas here. If you want to be tested from a  private hospital, don’t worry because they are not expensive. 

It is good that you are already doing your researches, however, each person is unique. I am no doctor, but from what my doctor told me, the first symptoms of HIV infection is like the same as any infection when you first get it, that is, fever and body malaise. Then for a period of time ( for years), the virus will be dormant in the body, as it slowly replicates itself until it comes to a point when you feel that you get sick every time. This is the time wherein your immune system has already been compromised with your CD4 count showing a low count. You will then be prone to different illnesses. Also your body won’t be able to fight against the opportunistic infections (OI’s) or infections that don’t normally affect non-HIV individuals.

Now let me answer your questions.

Are the meds expensive or free? 

There will be two answers to your question. 

If you are talking about the HIV medications or ARV’s, they are free here in the country. Currently the Global Fund (GF) is funding all the medicines in all the HIV/AIDS hubs in the country so you can get them all for free. However, by the end of the year, GF will discontinue it’s funding and the ARV’s will then be provided by PhilHealth. Our government, will then take over and the hubs are getting ready for it. We are still lucky that they are free because in other countries, like in the US, the cocktail (combination of ARV’s costs around $2k a month). The reason why our government will be able to afford the ARV’s is because they are the generic form which are manufactured in India so they are cheaper but work the same.
If you are talking about the medications for the different infections caused by HIV, then it is a different matter. Now, it becomes a case to case basis depending on the infection that affects you. 

If you are already have AIDs like me (patients who have HIV and with AIDS defining illnesses), you will need to have prophylaxis even while taking the ARV’s. One is required to take them for months until your CD4 count goes up. For me, just for my 2 month’s supply of my cotrimoxazole and azithromycin which are my prophylaxis against the different OI’s, I spend around P3,000. Some hubs provide free prophylaxis but they almost, always run out of stock so you would be forced to buy them out of your own pocket. 

Does the HIV testing include CD4 test and Viral Load test?

Unfortunately these tests are not included in the HIV testing procedures. They are usually done in the HIV/AIDS hubs and they are pretty costly. the CD4 test would cost you around P2,500 to P3,500 while the VL, around P5,00 to P7,000. However, once you are already enrolled in any of the hubs, meaning you are already an HIV positive patient, after 6 months under PhilHealth, your CD4 is already free. Unfortunately the VL is not covered under PhilHealth so you will have to get it once a year.

If ever I have this "thing" inside my body, what are the things to do to keep my immune system okay?

Here are some tips on how to be healthy:

1. General Physical Fitness
    a. Eat healthy. Have a balanced diet of carbohydrates, protein and healthy fats. Eat fruits and vegetables to get your natural vitamins. 
    b. Stay active. Exercise regularly or just do a regular physical activity on a daily basis. It can be a 30 minute walk, stair climbing, biking. You can also do sports or any recreational physical activities.
    c. Sleep or rest for at least 8 hours. Take naps when tired.

2. Prevent illness
    a. avoid crowded places
    b. use hand sanitizers or wash your hands regularly with soap
    c. clean and sanitize your home
    d. avoid or limit eating or dealing with uncooked foods
    e. have a good oral and body hygiene
    f. bring alcohol in your bag to sanitize your work space
    g. wear masks if going to a hospital or public transportation
    h. be particular with drinking water.
    i. avoid promiscuous and unprotected sex. You get lots of infections through unprotected sex.
    j. Avoid unsafe needle injections. Don’t do drugs, for that matter.

3. Emotional and Mental Fitness
    a. Find time to relax.
    b. Have a hobby to distract you from your illness
    c. Read and be knowledgeable to calm your nerves
    d. Go out of town or travel
    e. Attend mind and body group exercises like yoga or tai chi.

What were the symptoms you first felt?

If I would recall, I had frequent diarrheas, frequent fevers, frequent coughs and cold for 2 years. 8 months before I was diagnosed I had persistent dry cough, chest pain and difficulty of breathing when walking. They were my symptoms of pneumonia which I later found out when I was already confined in the hospital. During that time, I also had night chills and night sweat.

Since HIV positive individuals are rising in our country, do you feel now the scarcity of ARV meds?

I know that in some hubs, there are already problems with their ARV’s being delivered late, but I think it is not the supply that is the problem but by the hubs themselves by not monitoring wisely their supplies. 

Are your fellow pozzies supportive of each other?

This I can assure you. I have a group of pozzie friends who meet every week, to hangout and to enjoy each other’s company. The pozzie group here is strong and I am proud to say that they support each other, monitor each other;s health and help keep the positive spirit burning in them.

I do hope I was able to answer all your questions. Feel free to email me again anytime you have other concerns.


Good Luck!
Pozziepinoy





FOR TOPIC SUGGESTIONS, please email me at pozziepinoy@yahoo.com
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