Needs Counseling and Gancyclovir

Posted by Pozziepinoy on 8:28 AM
Hi,

Good day!

My name is XXX a housewife, I’m browsing about HIV and found your site guiding and helping the family and patient.

My cousin is currently admitted in XXX. XXX is XX years old and confirmed positive in hiv. The doctor advice us that he need to take ganciclovir two times a day and the medicine is too expensive. His parents have no permanent job and honestly we cannot afford the medication.

Please educate us on how to avail assistance and support from your good company.

And can we also call someone who can talk to my cousin to give some counselling.


Thank you in advance and looking forward for your response.

XXX


POZZIEPINOY'S RESPONSE


Hi XXX,

First of all thank you for searching and finding the blog for your cousin. By doing so your heart has definitely led you to us.

In response to your query, I already contacted our Care Manager for XXX, the hospital where your cousin is in right now. I already told him what you are requesting for. Directly, I emailed you his phone number so that you can directly communicate with him. I really hope that everything will soon be ok.

For the sake of all the readers, let me share with all of you what you cousin is experiencing.

XXX, aside from HIV, your cousin may be diagnosed as having the opportunistic infection, cytomegalovirus (CMV) retinitis. This infection is one of the AIDS-related conditions that affects the eyes. Untreated this could lead to blindness. Gancyclovir is the medicine to treat this infection. Oral valgancyclovir is also a medicine for this. These medicines are costly as one should be on this for 6 months on a daily basis. IV gancyclovir requires frequent visits to the hospital, thus taxing and somewhat burdensome. However, it is treatable and early arrest of the virus can save the eyesight.

The challenge for this is really the cost of the medicines. The biggest HIV and AIDS Treatment in the country, the Research Institute for Tropical Medicine - AIDS Research Group offers this for free to their clients who are enrolled in their hub. Other hubs, unfortunately don't have this free service thus forces their clients to purchase out of their own pockets. 

However, the Foundation has found a way to help the indigent people living with HIV when it comes to this medicine. With the prescription and medical abstract from the doctor, a client can go to the Philippine Charity Sweepstakes Office (PCSO), and request for assistance. They have a charity service offering free medicines. Others, will go to the Department of Social Welfare and Development for assistance. Still others, they would approach the local government offices, i.e., Barangay, mayor, congressmen and senators for assistance. 

The Foundation insists on early treatment of this infection to save the eyesight of our clients. This is treatable, however, late treatment can lead to permanent damage. Thus it its imperative to do whatever you can to get the medicines, no matter what the cost.

To you XXX and your cousin, with the help of Ed, you will be in good hands. Please give us an update of his progress soon.

Thank you.

POZZIEPINOY


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