Worried About CMV Retinitis Treatment

Posted by Pozziepinoy on 8:03 PM
Hello. 

My name is XXX and I am HIV positive. At first it was hard for me to accept it but with the help of my supportive family I can say that acceptance is the only way through. Life has to move forward. Thank you for gov't assistance and NGOs like yours for advocating awareness about HIV.


I wrote this letter bec I I'd like to inquire about how a financially-challenged patient can avail support to finance hospital bill. Currently I am admitted in RITM for induction of ganciclovir twice a day for 21 days to treat cmv retinitis in my right eye. The med is too pricy that it costs 4000 per day. Honestly, I can't afford the medication. 

Please educate me on how to avail assistance from your office and the requirements needed.

Thank you and I'm looking forward for your response.


POZZIEPINOY’S RESPONSE

Hi XXX,

Thank you for your email. Thank you for reading the website and the blog. 

The Project Red Ribbon is grateful for the kind words that you wrote about us. We, as foundation, will continue to pursue our mission of improving the lives of people living with HIV through awareness, resources, treatment, care and support.

I am glad that you have accepted HIV fast and had disclosed your status to your family. The support of our loved ones is very important to help us get through our life with HIV. One of the biggest issues facing our health is the fear to be rejected and loved and is one of the biggest obstacles in the healing process. Often, our patients with AIDS, who have been bedridden combine this fear of not being accepted and loved because of HIV and the treatment itself. Depression complicates the situation and contributes to the already weakened immune system of a person living with HIV. Over all well being is then compromised.

In response to your concern, I asked our Care Manager to look for you in the RITM ward to provide you with more information about the treatment of your CMV retinitis. He asked his volunteers also to give you counseling and focus on your health.

Project Red Ribbon and RITM-ARG had established a good partnership with the Philippine Charity Sweepstakes Office. Once you get discharged, your doctor will refer you to the pharmacy to get your medicine there. This will be covered by the PCSO's guarantee letter as payment of your medicine. Your HIV doctor can elaborate on this so you don't need to worry.

You can also coordinate with our TRR Care Manager Gerald at 0927-287-8210. He can guide you with the steps that you need to take to get free medicines for your CMV retinitis once you get discharged. Often, the pharmacy is supplied with your medicines by the Department of Health-NASPCP. You can also access this, just ask Gerald.

 I hope I was able to answer your concerns. Feel free to email me again if you have other questions.


Stay healthy,
Pozziepinoy






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